Tuesday, December 26, 2017

Last Surgery, Now we have to Move out of our home!


Boy time has gone by so fast! My macbook had a small crash in 2015.. I lost a lot of information and have not been able to post much! I am not the greatest Blogger but I want to get the info about my sons Traumatic brain Injury! Wear a Helmet Please No one wants to go through what my son went through.
It has been 5 years since Everett's Accident! He is doing Well and has made it through physical therapy & Occupational therapy through  CCS, California Childrens' Services, and they are an amazing group of therapist!!!
Everett has now aged out, turned 21 in January! Wow, I can't believe that much time has past!! He was 16 when he had the accident.

Everett just had his last Head operation in October, he had a titanium mesh plate placed in his head to protect his brain and close the large gaps on his head where the bone flap was missing!

Everett went through a year long expansion on his head. Two balloons were surgically placed under his scalp, major surgery, and they were inflated with saline every other week. Everett's head was quite large and strange looking for such a long time! Sleeping was no fun, Ev had many headaches and was a trooper through it all!  Thank goodness he is a fast healer and has a great attitude!

Once the Dr. felt he had enough skin, then the surgery was booked! Yeah
Between Plastic surgery and Neuro surgery, Everett had the procedure completed, 4 hours in surgery 1 week in the hospital for recovery.
Surgery is so scary and I know that he always does well and comes out great! This time he lost too much blood in his drains, he needed a double blood transfusion while in recovery. I've never been so nervous in my life!!

Everett was such a trooper through it all,cool as a cucumber.. me a mess inside. The trick never let them see you stress out and always smile and say everything going to be alright!! :)

I want to add photos but my iPhone and Macbook still are not talking to each other!!! I am not able to download my photos!!! I need help and are too broke to take it over to Apple! HELP

I was not able to get Everett the wheelchair he needed, was not able to raise enough money, however I was able to put a down payment on the ramp we so desperately needed!!! Thank you to those of you who donated!!

The house we live in has been sold! Sadness, we have to move and do not have enough money to do so. Does anyone know of any programs that help with money for housing? We are with Housing Choices for disabled persons and it is not moving fast enough!

Hopefully we can get the help we need, soon. We have become accustomed to having a roof over our heads! :)

Till next time, I need to keep packing, we have to be out of the house by January 19, 2018!! What a way to bring in the year!


Tuesday, July 15, 2014

The Best Part is, Everett Walked Across the Stage On His Own Power! We no longer need a wheel chair... We were not able to purchase one. The Wheel chair he needed cost $5,000. and we were not able to raise enough money... EveretT did suffer some extra physical issues by Not having the correct chair for his height, 6'2 and his physical issues.
Instead between myself and his therapist we got Ev walking!! Woohoo!! He is still uneasy on his feet but for the most part he walks and does well!
Fatigue is a huge part to a Brain injury and being sensitive to loud noise and or voices. Ev tires quickly.. faster than you and I would... sometimes he lasts longer than me!! Ha Ha I'm gettn old!!

Keep A Smile on your Face and be grateful you have the use of all of your body parts and your memory!

 Trying to keep things going and Ev's memory alive and awake.. visiting Carmel and the famous Lone Cypress
Thanks to a good friend, I was able to take Ev to his favorite event the Vans Warped Tour, with VIP tickets so Ev could take breaks and rest in a nice cool shaded area with tables and chairs, between seeing his favorite bands.
it was a fabulous day despite all the blisters he suffered on his toes!
I haven't posted in a long while. so many great improvements for Everett have happened! He has done very well in therapy. He walks great with the help of his AFO leg brace.
Ev will forever have some kind of physical and memory loss due to his #TBI(Traumatic Brain Injury) Issue but what's important that he is alive and gets to do most things he enjoys in life.
I myself can be a mess afraid to let him go out on his own and go for walks. He forgets where he is and is still unable to read signs, most of all very forgetful.

I have so thank you to all of those who donated 2 years ago. Everett still needs financial help. He has since then turned 18 and unable to work or ever drive a car due to seizures and the paralyzed muscles and nerves in his right ankle. It makes him sad that he'll never drive and all he could do is make jokes, like hey mom let me Drive... there are times when I am so tired I really wish he could drive!!!

Everett was allowed to Graduate/walk with his class of 2014!  I am so proud of him he has made such an awesome effort at school and even made the Honor Roll this year Yippee Kudos my son!!

Everett is finishing up some Units to complete his diploma.. summer school is fun for him and it keeps him busy!

You can still donate to his cause and life long issues. Most of all Wear A Helmet keep your noggin safe!!

                                             Me and Everett after Graduation

                                Everett with his older sister and younger Brother

Wednesday, October 23, 2013

Hi All,

Sorry Life has been very busy with therapy and me now attending school to get my Teacher Training certificate!!!
Everett is Now in His Senior year of High School, He is getting better and still needs a lot of therapy! However he is having a good time at school despite the odds. I don't think he will be able to enjoy any of the future dances that he would normally attend. It makes me sad he should be having a Grand time like the rest of his friends!

Gotta run to class..
Here is picture of Ev in his senior photo!!! 2013

Doesn't he look so Handsome!!! Yippee!

We still struggle with medical Bills so If you can find it in your Heart please Donate anything you can to Everett's recovery!! Peace and Love to All!!  Evs MOM!!!

Tuesday, June 18, 2013

Hello All,

So It has been sometime since I posted anything..... Well 2 weeks ago at Everett's Choir teacher's retirement Farewell Ev had a terrible seizure, somehow it ended up in the paper don't know how, but his seizure was so bad we had to call 911!

It was such a horrific site to see, Ev was so scared, I was in tears trying to keep him calm. His sister was in tears as she called 911.  It lasted more than 10 min, his body was out of control and he was so scared. So glad when the fire Department showed up and gave him a shot to help stop the seizure!

It was so terrible and Ev remembers the entire thing, he couldn't control his body, the spasms were so strong. It took Ev about 3 hours, in the ER, to regain his mobility and ability to speak.
He is now doing great, but has some minor set-backs. His language skills were affected, and things are a bit jumbled in his head : (   I'm really sad because he worked so Hard in school the last 3 months!

All I can say is he has the best attitude and a big smile on his face!!

A Big Thumbs up in the ER

Here is Ev, 3 days before his big seizure at the final concert performance, with his Older sister after he received his certificate for 3 years of dedicated Concert Choir!

Monday, April 29, 2013

Holistic Medicine

Still taking my son to an acupuncturists, things are going really good.... So now I am seeing an acupuncturist/herbalists! She is fantastic,I totally recommend It, haven't felt this great in years! Amazing how one, one hour session brought new life to me.. not you all will feel this... but i went to another in the past and never got this type of results! Why am I telling you.. well I'm getting older and I need to continue to be there for my son and I need to be in tip top shape!! I won't be any good to my son If I continue to suffer from migraine headaches, hip pain, lower back pain and major fatigue!
In just one session I feel like a whole new person and I have no fatigue!!! Interested in where I went... Well the place is called Marco Polo's on 2nd St. in Morgan Hill.. Her name is Michelle, yes she is Chinese and a professor, she works on medical points and works to bring your Chi to full balance and my Chi was not moving, but it is now! amazing how our ailments can be seen on our tongues.. everything I knew that was wrong with me, she told me just by looking at my tongue!

So now on to Everett, He is walking better these days, some issues with the right side and not as bad as before. He walks with a cane and doing well. He gets tired and some pain in his back just from trying to stay upright and walk.... that little thing we all take advantage of. I never really thought about it until I watched my son trying to turn around, in an isle at the store, and he makes a giant circle just to turn around. Something we can all do very quickly in one spot.

Here's a fun Photo we took at Walmart today!! ha ha

We are still working on his memory : (   His past is still in the past... Short term is still not there either, but he tries very hard everyday, we constantly work on re-call everyday to help him to remember!!
Don't get me wrong he has memory, like Math.. I know really yup Math, and his favorite bands and lyrics. Choir he loves it and remembers all of the lyrics.. speaking is a small minor issue but when he sings... He sings like an Angel!!
Everett competed with his choir 2 weeks ago at University of San Luis Obispo, he did fabulous and the crown cheering him on his friends helped him to the top of the risers, it was such an emotional moment for me... he had just gotten is new AFO, leg brace, that week and it allowed him to stand for 30 minutes, it was magnificent a beautiful Miracle!!

This is a picture of his last big performance at the San Juan Bautista Mission. That is Ev with his good friend Jeffrey, Me and his Aunt and Grandma on his dads side. Ev standing down front during the concert.. There was no back to the risers so he stayed at the bottom.

Well I need to make dinner, please consider  making a donation towards Everett's medical bills, every bit helps.

Thank you Have a fabulous Evening!

Monday, April 8, 2013

Getting Stronger

Hi Everyone,

Does anyone read this?? Well any who it's been a while.. Everett is moving right along. His Physical and Occupational therapy is going well. He is getting stronger and smarter everyday!
I get secretly emotional every time he gets to a new mile stone!

Ev has had headaches on and off nothing major this time but he was dialed up again.. so he can have more fluid in his brain. (Dialed up) we he has a permanent shunt in his brain which has a small valve that opens and closes, it controls and drains the fluid in his brain, without the shunt his brain would fill up with too much fluid or may drain to fast causing more drain damage.

Everett is back in school, we had a boring Spring Break and lots of Dr's appointments and therapy sessions. I just started Ev on Neuro acupuncture, his first session went well, extremely expensive, and as his mother I will do anything help him get better. He did well with the needles in his head. It was interesting all that they do. So the needles were placed in certain areas of his head, she would ask questions and would massage the area where the needle was placed and would then have him move a limb, this went on for a while. All needles placed then he had to do some physical movements and stretches, then massage the area again. I swear it was working!! The freaky part for me they sent him home with me with the needles still in his head!!! Ahhh this was to continue to bring good energy to his affected areas.
I tell ya he was so funny all the way home in the middle of heavy traffic!! I was laughing so hard I had tears in my eyes. He was just signing songs, like he always does, being extra silly and gesturing to me with funny looks on his face!

The needles in his head!

Ev had quite a bit of homework over Spring Break, it took him a few days to do his Math, but he did it on his own with little help! So proud of him!

The day after his acupuncture appointment his phone was reactivated, he had been trying to unlock his phone for a couple of days and could not figure out the puzzle code, so Saturday Shazam he got it the first try!! yeahhhh He just remembered!

His memory is still gone but he has moments when he remembers things, day to day is still very difficult for him. I can't imagine what he's thinking, wondering why he can't remember anything.
It's like Ground Hog day, almost reliving the day... he just has no memory of his day! I am glad that he remembers me now.... his mom!

The one thing I really love and Enjoy Every Day I His Big Smile!! This is Ev taking a break from his math homework with a big smile on his face!!!

Me and my daughter go walking a lot, so last week Everett says, "I wanna go for a walk." so ok I didn't think he was up for it but he went as far as he could walking with his cane! Big Smile On His Face!

Well I need to clean up and get him ready for a shower! You all Have a fabulous evening/Day!
Hug your loved ones, tell your children, parents significant other you Love them.. because you never know what tomorrow may bring!